POSTPARTUM DATA PROJECT
Turning lived experience into
better maternal care.
Thousands of mothers leave birth with experiences that never appear in medical records or research. This independent, mother-led project documents those experiences through voluntary surveys to find recurring gaps in education, communication, mental health support and continuity of care.
100+ responses so far
Phase 1 open now
TAKE PART
Share your experience
For Mothers
Your experience can make gaps visible
A short, anonymous survey about the information, support, communication and follow-up you received during pregnancy, birth or postpartum. Positive, negative or in between, every response helps.
THE FINE PRINT
About this project
What it is
An independent education and advocacy initiative led by Perinatal Education & Advocacy LLC. It is not a clinical study, patient registry or substitute for medical care, and it has not undergone institutional review board oversight.
How information is collected
Separate voluntary online surveys for mothers and healthcare professionals. Participants must be 18 or older and may skip any question. No names or identifying information are requested.
How responses are used
Responses are reviewed together to find recurring themes. Aggregate findings may appear in reports, educational materials, presentations, advocacy and consulting. Anonymous quotes are shared only when they can’t identify anyone.
Limitations
Findings reflect the people who choose to respond and aren’t representative of all mothers, providers or hospitals. Individual accounts can’t be independently verified.
Questions
For questions about participation, privacy or how findings are used, contact Casey.