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For Mothers
Your experience can help make gaps in maternity care more visible.
Every survey helps identify patterns that individual stories alone cannot reveal. Your experience, whether positive, negative, or somewhere in between, helps build a clearer picture of postpartum care. If you have experienced pregnancy, childbirth, or postpartum care, you are invited to complete a voluntary survey about the information, support, communication, and follow-up you received. No names or direct identifying information are requested. Individual responses will not be publicly attributed to participants. Findings may be summarized in educational materials, reports, presentations, advocacy work, and organizational consulting.
Share Your Story
Complete a short survey about your pregnancy, birth, or postpartum care. Participation is voluntary, and you may skip any question.
Contribute to a Broader Picture
Your response will be considered alongside others to identify recurring experiences and potential gaps in maternity care.
Follow the Findings
Aggregate findings will be shared through reports, educational projects, presentations, and updates from Perinatal Education & Advocacy.
Postpartum
Data Project
Turning lived experience
into better maternal care
What is the PDP?
Every year, thousands of mothers leave birth with experiences that never appear in medical records, quality dashboards, or research studies. The Postpartum Data Project exists to document those experiences and identify recurring gaps in education, communication, support, and postpartum care
The Postpartum Data Project is an independent, mother-led initiative documenting how women experience pregnancy, childbirth, and postpartum care. Through voluntary surveys, the project identifies recurring gaps in education, communication, mental health support, complication recognition, and continuity of care. Responses are analyzed in aggregate to inform public education, advocacy, and future conversations with maternal healthcare organizations
Prenatal & Postpartum Education
Whether mothers received clear, useful information about childbirth decisions, physical recovery, urgent warning signs, mental health, and the transition home
Mental Health Screenings
Whether mothers were screened for postpartum depression and anxiety, when screening occurred, and whether concerns led to meaningful follow-up or referrals
Experiences
with Providers
How communication, informed consent, dismissal, responsiveness, and support shaped mothers’ experiences and their trust in the healthcare system
Postpartum Complications
Whether mothers felt prepared to recognize physical complications, how providers responded when symptoms were reported, and what barriers affected timely evaluation or treatment
For Healthcare Professionals
If you support patients during pregnancy, childbirth, or postpartum, your perspective can help identify the practical barriers affecting education, discharge, screening, follow-up, and continuity of care. We want to understand what's working well in addition to identifying barriers that prevent excellent maternal care.
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The professional survey is voluntary and does not request the name of your employer or healthcare organization. Please do not include patient names, protected health information, or details that could identify an individual patient.
About This Initiative
The Postpartum Data Project is an independent education and advocacy initiative led by Perinatal Education & Advocacy LLC. It is not a clinical study, diagnostic tool, or substitute for medical care. Participation is voluntary, and responses represent the experiences of those who choose to participate; they should not be interpreted as representative of all mothers, patients, providers, or healthcare systems. Findings will be reported in aggregate. Participants should not submit names, protected health information, or details that could identify another person.
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How Information Is Collected
The project uses separate voluntary online surveys for mothers and healthcare professionals. Participants must be 18 or older and may skip any question they do not wish to answer. No names or direct identifying information are requested. Participants should not include patient names, provider names, protected health information, or details that could identify another person or healthcare organization.
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How Responses May Be Used
Responses are reviewed collectively to identify recurring themes and patterns. Aggregate findings may be used in:
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Public reports and project updates
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Educational materials and presentations
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Maternal health advocacy
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Articles and public commentary
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Program and resource development
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Consulting work with healthcare organizations
Selected anonymous quotations may be shared when they contain no information that could reasonably identify the participant or another person. Individual responses will not be used to evaluate or publicly identify a specific provider, practice, hospital, or healthcare organization.
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What This Project Is and Is Not
The Postpartum Data Project is an independent data and listening initiative. It is not a clinical study, diagnostic tool, patient registry, or substitute for medical or mental health care. It has not undergone institutional review board oversight and should not be interpreted as academic, clinical, or population-level research. Participation does not create a provider-patient, therapist-client, or consultant-client relationship with Casey Keen or Perinatal Education & Advocacy LLC.
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Important Limitations
Participation is voluntary, and respondents choose whether to take part. The findings reflect the experiences of those who complete the surveys and should not be considered representative of all mothers, healthcare professionals, hospitals, or maternity care systems. Responses are based on participants’ personal recollections and perspectives. The project cannot independently verify individual accounts, medical diagnoses, clinical decisions, or events described in a submission. Findings will be presented with these limitations clearly acknowledged.
Questions About the Project
For questions about participation, privacy, or how project findings may be used, contact:
Casey Keen, MS
Founder, Perinatal Education & Advocacy LLC
